Hello world - late-deafened adult here!
It has been a while since we connected!
And so much has changed in my life. I was going through my profile
that I must have written a decade ago, and how I have described self as someone
who “may” lose all hearing! And well, here I am – 38 and deaf. Not a sound
passes through these ears and alerts the brain – so much so that I can sit on a
tarmac and not even hear a plane taking off!
I truly believe in karma. I truly believe in the power of
manifestation. And I truly believe that if we keep thinking about certain
things in life – they do happen. Sadly, that is the case for both – good and
bad things. I had dreaded the day of losing all my hearing and being completely
deaf – since the time my progressive hearing loss journey started at the age of
20. The doctors who narrated the stories of hope about how some patients do not
lose all hearing and continue to have a normal life with the help of hearing
aids remained like the blue sky that I knew I would never touch. It is just that
you know certain things. The gut feeling.
I knew this day would come. I did not expect or anticipate it
to come so soon.
My hearing started going at the bottom of the charts around
2020-21. I tried to blame the hearing aids or weather or just a case of ‘sudden
loss’ and things would be returning to normal soon – but that was not to be. The
audiologist’s announcement that ‘this is it’ – this is the best hearing aid or
amplifier that we have right now and if this is not helping you, I doubt
anything else will! How a simple statement, a matter of fact, said at the moment
has the power to alter the course of our lives.
And that was it.
It has been close to 3 years now. I am in a much better
place with acceptance than I assumed I would be. But these new labels – a late-deafened adult, deaf, disabled – take time to get used to. Social setup
adjustments have been the worst. So many relationships ended – so many new began.
I am surviving so far with the faith that things are ok. Technology
has been a boon – my being a technophile has helped me to take up accessible
tech easily, rather I have reached a stage where I am advocating for it #a11y
Let me share my experiences in a larger post for laters –
for now, glad to be e-back!
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